UK Obstetric Surveillance System (UKOSS)
UKOSS: A national system to study rare disorders of pregnancy
To develop a UK-wide Obstetric Surveillance System to describe the epidemiology of a variety of uncommon disorders of pregnancy.
- To use this system to lessen the burden on reporting clinicians of multiple requests for information from different sources.
- To enable the conduct of parallel cohort or case-control as well as descriptive epidemiological studies.
- To use the knowledge gained to make practical improvements in prevention and treatment and allow for more effective service planning.
- To provide a system capable of responding rapidly to emerging conditions of major public health importance.
Why study rare disorders?
Rare conditions of pregnancy:
- Are under-researched.
- Our understanding of them is poor.
- Any interventions used in current clinical practice are rarely based on robust evidence.
- Routine sources of information are limited or unreliable.
- Comprehensive studies require a large collaboration to identify relatively small numbers of women.
- Requests for information from multiple sources about different uncommon disorders can place an unacceptable burden on reporting clinicians.
This single, routine, reporting system avoids these problems and has the benefit of allowing the range of conditions under surveillance to change over time.