UK Obstetric Surveillance System (UKOSS)

Notice for those affected by the recent Cyber Attack

Since the recent cyber attacks that affected multiple NHS trusts we have been informed that some reporters are unable to access the report links. It would be appreciated if you could contact your IT teams and ask for UKOSS links to be made accessible. We recognise that the NHS IT teams are likely to be overstretched at present and so we appreciate this may continue to be an issue for some time. In the meantime please report to UKOSS by emailing your report to the UKOSS team ( When reporting via email please clearly state your name, hospital and the month for which you are reporting. As always notifications of "nothing to report" are just as important as case reporting.

Please report cases of the following in your June 2017 report:

  • Single Twin Demise
  • Breast Cancer in Pregnancy
  • Cirrhosis in Pregnancy
  • Seasonal Infleunza in Pregnancy
  • Epidural Haematoma
  • SHiP
  • Amniotic Fluid Embolism

NEW STUDY: Cirrhosis in Pregnancy

A new study, Cirrhosis in Pregnancy, will be starting on the 1st of June 2017 and will be collecting cases until the 31st of May 2018. This study will appear on the June report which will be requested in early July. Please see the Cirrhosis in Pregnancy study page for the case defintion and further information. If you have any questions regarding this study please contact the UKOSS team (

UKOSS: A national system to study rare disorders of pregnancy


To develop a UK-wide Obstetric Surveillance System to describe the epidemiology of a variety of uncommon disorders of pregnancy.


  • To use this system to lessen the burden on reporting clinicians of multiple requests for information from different sources.
  • To enable the conduct of parallel cohort or case-control as well as descriptive epidemiological studies.
  • To use the knowledge gained to make practical improvements in prevention and treatment and allow for more effective service planning.
  • To provide a system capable of responding rapidly to emerging conditions of major public health importance.

Why study rare disorders?

Rare conditions of pregnancy:

  • Are under-researched.
  • Our understanding of them is poor.
  • Any interventions used in current clinical practice are rarely based on robust evidence.
  • Routine sources of information are limited or unreliable.
  • Comprehensive studies require a large collaboration to identify relatively small numbers of women.
  • Requests for information from multiple sources about different uncommon disorders can place an unacceptable burden on reporting clinicians.

This single, routine, reporting system avoids these problems and has the benefit of allowing the range of conditions under surveillance to change over time.

Download Powerpoint Presentation

Introduction to UKOSS presentation