UKOSS: A national system to study rare disorders of pregnancy
View the Study Day presentions.
You can now see results for the UKOSS COVID-19 in pregnancy study.
To develop a UK-wide Obstetric Surveillance System to describe the epidemiology of a variety of uncommon disorders of pregnancy.
- To use this system to lessen the burden on reporting clinicians of multiple requests for information from different sources.
- To enable the conduct of parallel cohort or case-control as well as descriptive epidemiological studies.
- To use the knowledge gained to make practical improvements in prevention and treatment and allow for more effective service planning.
- To provide a system capable of responding rapidly to emerging conditions of major public health importance.
Why study rare disorders?
Rare conditions of pregnancy:
- Are under-researched.
- Our understanding of them is poor.
- Any interventions used in current clinical practice are rarely based on robust evidence.
- Routine sources of information are limited or unreliable.
- Comprehensive studies require a large collaboration to identify relatively small numbers of women.
- Requests for information from multiple sources about different uncommon disorders can place an unacceptable burden on reporting clinicians.
This single, routine, reporting system avoids these problems and has the benefit of allowing the range of conditions under surveillance to change over time.
Download Powerpoint Presentation
Introduction to UKOSS presentation
The current membership of the UKOSS Steering Committee is:
- Ms Joyce Adu-Amankwah
- Specialist Haemoglobinopathies Midwife, St George's University Hospital NHS Foundation Trust
- Dr Akila Anbazhagan
- Consultant Obstetrician, St Mary's Hospital, Wythenshawe
- Mr George Attilakos
- Consultant in Fetal Medicine and Obstetrics, University College London Hospitals NHS Foundation Trust
- Mr David Churchill (Co-Chair)
- Consultant Obstetrician, The Royal Wolverhampton NHS Trust
- Dr Katie Cranfield
- Consultant Anaesthetist, Royal Victoria Infirmary
- Ms Rhiannon D'Arcy
- O&G Trainee, Buckinghamshire Hospitals NHS Trust
- Ms Sarah Davies
- Clinical Research Midwife, Health and Care Research Wales
- Ms Charlotte Frise
- Consultant Obstetric Physician, Queen Charlotte's and Chelsea
- Ms Laura Goodfellow
- Trainee O&G, NIHR Academic Clinical Lecturer, University of Liverpool
- Ms Julie Grindey
- Research Midwife, Wirral University Teaching Hospital NHS Foundation Trust
- Ms Tannice Hemming
- Patient and Public Involvement (PPI) Representative
- Dr Yasmin Jamil
- Consultant Obstetric Physician, North Central London Maternal Medicine Network
- Ms Mervi Jokinen (Vice-chair)
- Royal College of Midwives (RCM) Representative
- Professor Asma Khalil
- Vice President for Academia and Strategy, RCOG
- Professor Marian Knight
- Senior Clinical Research Fellow, Head of UKOSS
- Professor Jenny Kurinczuk
- Consultant Clinical Epidemiologist, National Perinatal Epidemiology Unit
- Dr Barbara Macafee
- Consultant Anaesthetist, Royal Jubilee Maternity Hospital, Belfast
- Dr Leslie Marr
- Reproductive Health Programme Manager, Healthcare Improvement Scotland
- Dr Inass Osman
- Consultant Obstetrician, NHS Ayrshire and Arran
- Dr Vinnie Sodhi
- Obstetric Anaesthetists' Association Representative. Clinical Lead for High Risk Obstetric Anaesthesia , Queen Charlotte's and Chelsea Hospital
- Ms Nicola Vousden
- Trainee in Public Health, NIHR Academic Clinical Fellow in Public Health, London
- Dr Claire Williams (Co-Chair)
- Consultant Anaesthetist, Cambridge University Hospitals NHS Foundation Trust
All links below are external, and will take you away from the NPEU site.