Diabetes & Pregnancy Priority Setting Partnership

Diabetes affects over 5% of all women giving birth in the UK. Compared to the population of women without diabetes, it increases the risk of complications during pregnancy and birth for the mother and her baby, and can also affect them in the long-term. More research is needed to help provide the best health care for women, with or at risk of diabetes, who are planning pregnancy or are pregnant.

A James Lind Alliance Priority Setting Partnership has been established by the NPEU, University of Oxford in partnership with the James Lind Alliance, Diabetes UK, JDRF, DRWF, healthcare professionals (HCPs), and people who have lived experience of diabetes and pregnancy. 

Our aim is to produce a top ten list of research questions that women, their support networks, and HCPs agree are the most important for research to address in diabetes and pregnancy.

The top ten list will be shared with the public, research funders, national policy makers and clinical studies groups to inform their priorities and strategies for funding research. Thereby, this project will enable funders to support research for which there is great need and that is aligned with the priorities of those impacted by it.

Do you have questions about diabetes and pregnancy?

Tell us what you think and help change lives

Your questions can help us to find important areas to research in order to improve the healthcare and wellbeing of women and families affected by diabetes in pregnancy.

If you have any interest, worries or experiences in pregnancy with diabetes of any type, we want to hear your questions.

Please tell us your questions by completing our Initial Survey

Button to go to the online survey

This can be anything about the time before, during or after pregnancy with diabetes of any type e.g. type 1, type 2, MODY, gestational diabetes and others.

For example:

  • Is my diabetes likely to affect my baby’s health later on in their childhood or adulthood?
  • What effect does pregnancy have on getting diabetes complications later on in life?
  • What is the best way to manage my diabetes while pregnant?
  • What stops some women with diabetes from attending pregnancy planning clinics?
  • How does breastfeeding affect diabetes management in the mother?

Please see Our Scope for further details on the areas we will be including in the project.

For further information or help with this project, please contact the team by email at JLAPSP@npeu.ox.ac.uk, phone on +44 (0)1865 289 757, or Twitter @NPEU_JLAPSP