Making patient and public involvement in research more inclusive
A team of patient and public involvement (PPI) representatives and researchers from the NIHR Policy Research Unit in Maternal and Neonatal Health and Care (PRU-MNHC) in the National Perinatal Epidemiology Unit has published a commentary article about their experiences of working together to make PPI more inclusive.
The project they worked on was called The Listening Series. The team had discussions with people working with and advocating for a wide range of social and ethnic communities, including Black and Asian women and families; young parents; parents from socially deprived backgrounds; and women with physical or learning disabilities. Conversations focused on finding solutions to overcome barriers to the public getting involved in research. Based on what they heard, the team produced a guidance document for researchers and a film summarising the key messages.
Three years on from The Listening Series, their commentary article describes how the project was set up and how the team have embedded what they learned. The authors also reflect on their experiences and learning since changing the way they work, to focus more meaningfully/effectively on inclusion.
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