We are very grateful to all of the patients and parents who take part in the NETS studies, as without your support it wouldn’t be possible to complete them. If you know anyone who might be interested in getting involved, please share details of our work with them.
We also organise a Parent’s Advisory Group, who meet once to twice per year, and includes parents of any child who has had surgery in early infancy. Meetings are an opportunity to share your experiences of having a child who has had early surgery, and to help us shape the direction of our future research. If you are interested in coming along to one of the meetings, please email firstname.lastname@example.org for more information.