Closure of CAROBB and the establishment of a new National Congenital Anomaly and Rare Disease Registration Service (NCARDRS)
On the 31st March 2015 CAROBB will close and functions of the register will transfer to Public Health England.
Public Health England (PHE) are establishing a new National Congenital Anomaly and Rare Disease Registration Service (NCARDRS):
4150 Chancellor Court
Oxford Business Park South
Oxford OX4 2GX
Information collected by CAROBB up to 2015 will continue to be held by CAROBB until arrangements are made to de-identify and store the data for research purposes. More information about the new register is available on other pages on this website including the home page.
Once the transfer of CAROBB to NCARDRS has happened you will receive information about the new processes of notification to the new national register.
In the meantime you should continue to collect information about congenital anomalies and you can use the CAROBB notification form for this purpose. However, please DO NOT submit the form to CAROBB but hold on to your notifications until you have received instructions from NCARDRS on how to notify anomaly cases to the new register.