4Child - Four Counties Database of Cerebral Palsy, Vision Loss and Hearing Loss in Children
1st January 2011
It is with great regret that we announce that after 27 years of operation the 4Child register closed to new case notifications on the 31st December 2010. Unfortunately it has not been possible to secure funding to continue to run 4Child as an active register. The register data will, however, be retained in the event that further funding is forthcoming in the future. Formerly called the Oxford Register of Early Childhood Impairments (ORECI) 4Child has been collecting information about children with cerebral palsy (CP), sensorineural deafness or severe vision loss born to residents of Berkshire, Buckinghamshire, Northamptonshire and Oxfordshire since 1984 and now has information about 2,700 children with one or more of these impairments. The information on the register has been used to monitor trends and variations in birthweight specific prevalence rates of these three conditions and has contributed in particular to important research into the trends, causes and consequences of cerebral palsy across the UK, as part of the UKCP collaboration and across Europe, as part of the SCPE collaboration. Whilst monitoring of trends will cease and no further annual reports will be issued, following appropriate approvals, the valuable information held on the register remains available for use by clinicians and researchers in the field of cerebral palsy, vision loss and hearing loss.
I would like to take this final opportunity to thank the many hundreds of clinicians who have contributed data and used the information held on the register over its 27 years of operation. In particular I would like to pay tribute to the work of Dr. Ann Johnson who ran the register during many of its most productive years.
Prof. Jenny Kurinczuk