Independent advice

If you would like to contact an independent organisation to discuss the inclusion of babies in research studies generally, we suggest that you contact Bliss, the special care baby charity. Bliss helps premature and sick babies by supporting parents and families, campaigning for improvements in neonatal care and promoting new developments and innovations in care. Bliss contact details are: www.bliss.org.uk

Best Beginnings is another charity dedicated to ending child health inequalities in the UK, click on this link to enter their site: http://www.bestbeginnings.org.uk/

Best Beginnings have produced a Small Wonders information pack with a DVD and guidebook to tell mothers what to expect when a baby arrives earlier than expected or is sick; http://www.bestbeginnings.org.uk/small-wonders/

 

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This study is funded by the National Institute for Health Research (NIHR) Health Technology Assessment (HTA) Programme (Reference Number 11/92/15). The views expressed are those of the author(s) and not necessarily those of the NIHR or the Department of Health and Social Care.